Thursday, 18 May 2017

NEAW17

This week has been the National Eosinophil Awareness Week. Largely USA driven, but in recent years following research and increased understanding into Eosinophilic Diseases there has been a strong supporting role from the UK EGID community, largely coordinated by FABED.



This year however, it's all been rather different. Supporting, treating and establishing good practice for an emergent disease is never easy. It takes individuals and teams taking a leap of faith in trying new strategies, putting their heads above the parapet and bidding for funds for research to support new theories. This last is a gargantuan task - as I've stated previously on this Blog, less that 1% of all research funding goes on gastrointestinal conditions. Absolutely NONE goes on paediatric gastrointestinal conditions. Although eosinophilic disorders do indeed affect adults (my father has EoE) adult treatments are less controversial.

In the UK, few medications are licensed for under 12s. Tertiary level consultants can, however prescribe the, - and many do, it's surprisingly common. But prescribing medication for an emergent disease in under 12s is VERY challenging, and should always be carefully monitored.

My Blog Stats bear out the fact that many come across the Recipe Resource looking for information on EGID - Eosinophilic Gastrointestinal Disease. I therefore feel in this week in particular I need to write something to give the little information those in the EGID community have to my readers.

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