Showing posts with label exclusion diets. Show all posts
Showing posts with label exclusion diets. Show all posts

Friday, 21 November 2014

Facebook Group Recipe Round-up




The members of our Facebook group are soon going to put me out of a job.... we've had some inspirational cooking with very few ingredients showcased on there this week.


Here a just a few of them!





Chicken Pop Corn Kebabs

  • Cooked chicken breast, cooked mashed sweet potato, dash of oil and a little water if needed. 
  • Bind all ingredients together in a bowl with maize meal (polenta). 
  • Season if allowed and then divide into balls and pop on a baking tray, keep checking and turning. (Not an exact science as to when done. Just check and check.)
  • Once crispy and firm take out. I bought cake pop sticks and put 3 on each (like a kebab). 
  • Eat hot and cold.



Gingerbread Reindeer

Using a slightly different recipe to mine - (from the Glutafin site) one member made her own gingerbread reindeer. It's really simple, you can read more here.


I love the glass cherries for the red noses!

Lollies - Coming Soon!!!

Last but not least, I take my hat off to the person who made lollies on sticks from sugar alone, and wrapped them to look like store bought lollies! A real treat. For children who can only eat homemade food, sometimes making something look less homemade is a treat. My Mum used to make most off my clothes when I was younger, and clothes with labels in generated a great deal of excitement!


Keep checking back/subscribe for more info on how to make these simple treats.

Sunday, 16 February 2014

Why I set up the Recipe Resource. (The long version!!)

Inspired by Vicki's Guest Post for me, about her reasons for starting her Blog I realised I had never really given mine. So here they are - the long version...

The first few years of life are a time when most children gain weight and grow much more rapidly than they will later on, and the first year especially so. Having already had two babies with moderate reflux I expected our twins to suffer too, I felt I had “been there” and bought the proverbial T Shirt, even having two with reflux need not be too challenging, surely? How wrong can you be?!

Thursday, 11 July 2013

"Free From" Food Industry Exposed


Tonight's "The One Show" exposes the urban myths about "Free From" food. 


It's about time someone blew the whistle on the booming food industry in the West supplying "Free From food for those diagnosed with food allergies and intolerances and I was delighted that the BBC has chosen to highlight this industry. One of the main reasons I set up the "Recipe Resource" was precisely because of this surge in "Free From" products which seemed to be exempt from the increasingly high nutritional standards we have come to expect from the food we buy. I couldn't bring myself to feed my children the majority of the food on offer which was compatible with their medically prescribed exclusion diet.

 As I've said for years, so much of this food is poor quality, full of cheap non-food fillers like corn starch which can mess with your insulin production and blood sugar regulation in the long term, causing hypos in many on restricted diets. Sugar and salt content is often higher too, to disguise the lack of natural flavour. It's why I won't buy anything I can make myself - but we are lucky that the twins can tolerate more than many people I know.

Many people falsely believe "Free From" food is automatically healthier too. This is of course true in some respects, if you have Coeliac Disease then yes, a gluten free loaf (a third the size of a regular one costing £2.99) IS the healthier option but I do hate the trend for "free from" exclusion diets amongst some celebrities who have little or no idea of the impact publicising false health "benefits" can have. But what is particularly depressing is that my children, like so many other children and adults are dependent on the "allergy" food industry to meet their nutritional needs - whether partially or fully. We have no choice. Without a strict exclusion diet my son was heading towards bowel surgery due to chronic inflammation and resultant nerve damage due to local allergic reaction to foods. It is a medically prescribed diet which we have no choice but to follow, but this should not also be a nutritional compromise when we pay over and above the cost of similar regular foods.

It's time we had some real regulations, respect for those who are genuinely allergic and provision for healthy alternatives. There are many reasons why people exclude foods from their diet. IgE allergies, non-IgE gut allergies and intolerances are perhaps the most common, but whatever the reason those purchasing such foods need honest selling and deserve a basic nutritional standard. Manufacturing"Free From" food is a massive money spinner and people are being taken advantage of. At present we are being sold such food as if we should just be grateful. How about selling it for its content, what IS in it rather than what left out?

I've been saying all this for years.

Tuesday, 25 June 2013

Independence

We often discuss behaviour and allergies on here, but this is a different slant - behaviour and independence.

I've been thinking about the concept of independence quite a lot recently. With H about to set off to High School in September, learning to walk to school safely by himself and (attempt to) pack his own bag each day it was bound to be playing on my mind. However, I'm actually referring to independence in the context of his younger siblings - because H IS actually gaining independence, and in a terrifying-but-oh-so-liberating way I am watching him grow and mature with a smile on my face day by day. In fact that smile is fairly smug if the truth be told, since we have come within a hair's breadth of total exclusion, Special Needs placement, PRU and respite care more times than I care to remember over the past years. But there he is, eleven and a half - going on 15 in oh so many ways and yet still emotionally so very young. Yes, I'm pretty smug about that.

But the twins are a different "kettle of fish" entirely. A in particular hangs on to me, paws at me, "needs" me in a way his older brothers never did. You might say this is not that surprising given that he has complex health issues - but so does H, and so do an awful lot of other children I know who do not have this strong immature attachment at seven and a half.

I've pondered this at great length, with a large dose of self blame and not a great deal of clarity or insight. But today, whilst baking their "free from" sausage rolls, the penny dropped. Or more precisely, H's cat decided to steal one when my back was turned - and the complete over-reaction this precipitated and the depths of despair I felt caused the "penny" to sink firmly and completely at last.

Babies and young children depend so completely on their mothers for food and care (well, usually their mothers - let's not get caught up in a circular politically correct argument) and the umbilical cord of pregnancy in fact continues metaphorically well into childhood. There are many papers and books written about children's development and their growing independence - how they learn to loosen the ties sufficiently to promote healthy independence. (This isn't an essay requiring careful annotation and quite honestly I would rather get my point across but you can of course google.) I do remember reading such a book when J was small, how it depicted a child's mother at the centre of a number of concentric circles. Each circle represented the distance a child of a particular age would stray from its mother, with each circle's radius growing as the child grew older. I remember we considered this a completely crazy idea at the time, since J would enjoy wandering and never once look back - secure in the knowledge that his Mum would never be far behind him!

Which is, in a convoluted way, my point. You need that security, that certainty for independence. And it is an interesting fact that children who are pushed away too fast often end up being more clingy or withdrawn, because they lack that secure foundation. Any child with additional issues to cope with, be they health or social, economic or political will probably (and I am no sociologist or psychologist) take longer to develop that natural and increasing independence from their parents as they grow up to be their own person and make their way in the world.

So yes, you could argue that the twins have had a lot to deal with and it is understandable that they might be a bit clingy. But there is something more. That metaphorical umbilical cord - it's all about feeding and sustenance. To be independent you need your basic needs met and you need them to be second nature, 100% reliable. Children on medically restricted diets all too often lack that basic security for several reasons.

With my two, I am the only person in their world who can safely feed them. Now aside from the fact that that is a huge burden for me - it's a MASSIVE restriction for them. Socially of course - at parties, school lunches, holidays, eating out - I have to provide their food at virtually all these occasions. But emotionally the knowledge that they could not feed themselves, that there is only ONE person who is fully familiar with their needs and medications, allergies and restrictions is one Hell of a restriction and a major impediment to independence.


You might challenge that and ask what is so odd about children relying on their mother for their food - but they are 7. And a half. (Very important that half when you are 7!) They cannot eat anything without thinking, checking and having it confirmed as safe. Throw in a generous dollop of fear that they might become unwell if the food giver gets it wrong, and you begin to realise their level of dependency.




They are the ones who hang back at cake sales, or open their "safe" cake from home. They are the children who have a biscuit from their teacher, which was sent from home when the school have a "French Cafe" to experience other cultures. They will be the ones unable to fully participate in the "Bushcraft" trips in Key Stage 2 because it is absolutely NOT the idea for me to tag along, and how would that promote the independence such an event is held for the purpose of encouraging?

Children on exclusion diets (or those tube fed) are held back in SO many ways, denied their natural right to independent life. Later on, they will learn to read packets and navigate their own way through the minefield that is food labelling. But for now, that's my job. I'm sure there is the inevitable dose of bad parenting, with not a little over-protection at the more daunting times which I won't apologise for. I'm human like the rest and we muddle through. But I can at last understand one of the reasons why they are perhaps in some ways overly dependent.



So, given that the penny has well and truly landed........ what now? What can I do to help tackle this? Firstly, I think I need to really focus on the one thing I have avoided - for good reason. I've tried to limit their knowledge and the time they see me spend thinking about food and ingredients, because they are children. We crave normality and my version of Healthy Eating is that food is fuel, and that we shouldn't dwell too much on unhealthy concerns about eating or try to demonise certain foods. (Healthy Eating Blog post here) But I think we are now moving into "Health Development" and "Healthy LIVING", where knowledge can indeed by power and might release the twins a little from their dependency. For them, "Healthy" is to feel secure that their fuel source is secure and safe, and that THEY are involved.

So this summer, whilst we will be enjoying a lot of time together, I will be working on loosening those ties a little and preparing the ground for passing on that baton of self care. With a good few cookery sessions thrown in too hopefully I can empower them and build some confidence to take those baby steps to greater independence. Power to the Little People.

Sunday, 23 September 2012

Coconut Flour

Desperately trying to find new gluten free options I discovered Tiana Coconut Flour in our local Holland and Barrett store and had to try it.

It is high in fibre so might not suit all, but it is filling and easy to cook with (apparently!) It says you do need a wetter mixture if partially substituting in regular recipes, so do read the Tiana site first.

My first attempt at baking was not that good, despite making the effort to read the tips on the Tiana site (Recipes & Diets -> Baking with Coconut flour --> tips ) and trawling the web for a suitable conversion chart from imperial cups to imperial oz or even metric grams.

But I have now found a fantastic conversion chart (here) which works beautifully!
Today I retried the recipe I first attempted, (a basic coconut biscuit recipe) but today it worked a treat.

Baking with Tiana is not cake baking but batter baking, it relies on eggs so I would not like to make assumptions about it working with egg alternatives, although I might try the Vegg with it.

I used the recipe below.

You DO need to allow the batter to stand for 5-10 minutes to thicken up. I used a Pampered Chef scoop which is a little like a melon baller - I don't really rate Pampered Chef but this tool WORKS!! (It's fab for little cupcakes and biscuits.) I then flattened the balls a tiny bit with the back of a spoon, baked at 190 C for 15 mins and IT WORKED!!! These are rather moreish... be warned! For children who are deprived of so many regular tastes and textures this is a fab find, and has enhance our repertoire considerably.

Coconut Almond Cookies

1/2 cup Tiana coconut flour
1/2 cup ground almonds
1/2 cup butter (I used "Pure" Sunflower)
1 cup sugar (I used caster)
1/4 teaspoon salt
4 eggs
3/4 tsp almond extract (optional)



Unlike a cake, the instructions do not tell you to beat the sugar and butter together, just make sure the butter/marge is room temperature, and mix it with the sugar, eggs and salt, plus almond extract if you are using it. Stir in the flour and ground almonds. Let the batter rest for 5-10 minutes. Drop on a baking sheet in small spoon sized balls. Bake for 15 mins at 190 C until browned.



(NB the Tiana site suggests toasted almonds instead of ground almonds, and 1 1/ cups of grated coconut as well. I took advantage of the ground almond consistency as I didn't have any coconut.)

“This post is an entry into the Foodies100/Schwartz Flavour of Together challenge.”   Do you have a revolutionary flavour or ingredient which is particularly significant, evocative of times past or which adds something new to your alimentary life? Check out the Schwartz website to share your #FlavourStories !



Link up your recipe of the week

Saturday, 22 September 2012

Egg alternatives/substitutes

At the time this post was written, I was rather lax in investigating egg alternatives as we were not egg free. All that changed about six years ago and my daughter and I are now experienced #eggfree bakers! There is another post here with lots of easy alternatives. Free from baking should always be a little wetter than regular batters and mixes, it takes a bit of getting used to. It can be frustrating and the ingredients are not cheap (eg chia seeds) but the results can be really good - it's worth persevering. Free from sweet items in the supermarkets are all too often full of cheap fillers and a great deal of sugar (to hide the lack of flavour due to removal of proteins) so if you can possible bake your own, it's incredibly worthwhile.

A friend posted this chart elsewhere, it is an invaluable resource for those trying to exclude egg in cooking so I thought I would share it here.


Monday, 10 September 2012

Packed lunches

I've been really struggling to make interesting MEWS free packed lunches for my twins. Few egg free breads are palatable if they cannot be freshened up in the microwave which is obviously not possible at nursery/school. My two (currently!) seem to like Falafel, which is quick and easy to make. The Orgran one is OK, the Hale and Hearty mix is less crunchy (smoother consistency) but sloppier if mixed as instructed and more difficult to make round balls to fry. These also seemed to dry out faster in the fridge. Our favourite is the one our Co-Op sells, the "Just" range.
(If you are ok with corn Barkat make one with few ingredients but I have not tried this mix myself.)

So, today's cooking session was devoted to making Falafel and finding something to add with it. I have some tiny tupperware boxes I put sauces and dips in, so one twin has mayonnaise and the other ketchup to dunk these in tomorrow.

Given the bread problem mentioned above, I have been taking the advice on a friend on how to perfect rolls made with the Juvela Harvest White bread mix. I had no END of trouble getting the correct mix prescribed, this is the only one Suffolk PCT will sanction for those who are gluten free which is also dairy and soya free. DO read labels and check any bread mixes if you are lucky enough to receive gluten free prescription food. Mixes frequently contain other foods many children are excluding as they tend to cater for the gluten free category only.

This bread mix works particularly well as rolls, and you can now buy dairy AND soya free cheese from a couple of sources. I used this to create a cheezy topping on some rolls today, you could make cheese twists or even add some to the mix and make cheese rolls! I am indebted to Rebecca for these fabulous tried and tested suggestions.

Holland and Barrett on the high street stock Redwood Cheezly Soy free  which is easy to source, but our favourite is the Vegusto cheese!  BE WARNED though, their cheese contain nut protein, and NOT ALL their products are free from major allergens. They are intended as Vegan cheese products. The Melty is fab, often out of stock...... and the hard cheese we like is the No Moo Aromatic Cheddar. Strong tasting, but my daughter likes strong flavours! Her twin won't touch ANY cheese substitutes :S


So here we have some with and some without cheese. I have eaten these too, they are very palatable but do take some practice getting the method just right.

Please do email me any of your lunch box ideas to help others!



Sunday, 29 April 2012

Healthy Eating?

This was published as a Blog post here and on my personal Blog, but it's such a hot topic I have made it a permanent page - at least for now!

Today K and A's school included in their weekly "newspaper" an editorial on "Healthy Eating", asking parents to support the school's two week drive to improve on an already ongoing campaign.

But just what IS Healthy Eating? The school in question have twice termly cake sales, and hands out sweets in birthday assembly, which hardly fits the "Healthy Eating" criteria that the school is so keen to promote? But actually I have more support for cake sales than you might think. The key to good health is usually a balance in all things, cakes have their place in our children's diets as much as fruit, more so if you speak to a dentist - many of whom deplore the plethora of dried fruit snacks which are the biggest culprits for causing cavities in young children today. On the subject of fruit generally the message is the same, balance is key:-
"It might seem counter intuitive to think that a food with lots of sugar is good for your teeth, but fresh fruit is good for your teeth when consumed as part of a balanced diet."
However frequency also matters, and the modern craze for snacking does no one's teeth, blood sugar or appetite any favours.

Given that my younger two are on such restricted diets their school's two snacks a day (which has to be fruit or cheese) means we probably hit 5-a-day by lunch time, so I am not going to lose any sleep about the odd free-from cake which their school very thoughtfully provides for those unable to buy the regular cakes at their charity sales.  My bigger concern is the drive for low fat-high sugar foods, the demonising of animal fats and the rising importance of carbohydrates in society- and initiative endorsed by successive governments over the past couple of decades. The NHS' "Eatwell Plate" demonstrates clearly this change in focus, and the obesity surge and diabetes time bomb are evidence of how badly wrong politicians and health experts have been. The comments at the bottom of this NHS page do a far, far better job than I could of explaining how skewed our thinking has become about fats and carbohydrates. The processed food industry has been key in promoting grains and sugars, particularly fructose and sucrose with government support but many people are cottoning on slowly, with a surge in online writings trying to expose the myth that vegetable oils are good and animal fats are bad. Even schools are caught up in the effort to increase carbs and fruit and this frustrates me considerably.

My biggest issue with the "Healthy Eating" campaign though, be it at their school or elsewhere, is that I would really prefer my kids to eat for fuel and pleasure - social, sensory, satiety pleasures - and not think too much about it. I resent having to read every label, cook everything from scratch all the time and stress over their daily intake as it is, I try hard (and it IS hard) to ensure their lives are as normal as possible, that they don't feel too different and they don't miss out. But most of all, I would like for food and eating to be necessity not a focus, to take a back seat in life and just be something I as their mother need to consider. If we get through a day where the children have eaten when hungry, had their fill and run off back to more interesting activities then I have succeeded. A day spent thinking about every bite, each ingredient, its impact and value is a day wasted for a child, it is the responsibility of adults to feed their children appropriately and make it as mundane a process most of the time as filling the car with petrol. Of course food is to be enjoyed, but to make it a major or even the sole focus of a child's life for even a short period of time is as bad as ignoring natural appetite.

I have to say, I write none of this whilst wearing an imaginary halo, I fail miserably at this ideal many days and the children's extremely restricted diet makes it very, very difficult to achieve even our own version of normality. But my heart sank reading that newsletter column tonight, because all my efforts made on a daily basis will be shot down in flames in a misguided fortnight of demonising fats, pushing carbs, vegetable oils and fruit - but most of all in drawing attention to something which I would prefer my children not to have to think about. Add to that the fact that they will most likely be discrediting foods my twins rely on to keep them well and it's not going to be a positive experience I fear. I hope I'm wrong.



Related Posts Plugin for WordPress, Blogger...