tag:blogger.com,1999:blog-90512534160842468.post2005992870631623486..comments2023-11-30T19:53:56.055+00:00Comments on The Recipe Resource: NEAW17Twinsplustwohttp://www.blogger.com/profile/14647701493165196509noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-90512534160842468.post-38108725849438048552018-04-27T11:39:37.288+01:002018-04-27T11:39:37.288+01:00Have you read my recent post here http://therecipe...Have you read my recent post here http://thereciperesource.blogspot.co.uk/2018/04/a-post-fact-era.html? The inside story now the truth has come out about #GOSH and #EGIDTwinsplustwohttps://www.blogger.com/profile/14647701493165196509noreply@blogger.comtag:blogger.com,1999:blog-90512534160842468.post-66360749530669834312017-07-05T08:02:04.866+01:002017-07-05T08:02:04.866+01:00Oh that's really kind! Thank you. XOh that's really kind! Thank you. XTwinsplustwohttps://www.blogger.com/profile/14647701493165196509noreply@blogger.comtag:blogger.com,1999:blog-90512534160842468.post-33861573336850715132017-07-05T08:00:54.666+01:002017-07-05T08:00:54.666+01:00Yes that is sad. I don't really know what the ...Yes that is sad. I don't really know what the future holds as regards to care options then. I'd like to take the opportunity to say that this website has kept me chipper at some very trying times and knowing other families are like ours is a huge help to me! Thank you! ��Anonymoushttps://www.blogger.com/profile/15598536539904807763noreply@blogger.comtag:blogger.com,1999:blog-90512534160842468.post-35250087485958865072017-07-02T12:26:51.757+01:002017-07-02T12:26:51.757+01:00Sorry that you have had such a rough ride. Regardi...Sorry that you have had such a rough ride. Regarding GOSH, they have always tried to "own" the diagnosis of EGID in the Uk and kept local hospitals at arms length- which has deprived families of local care. They have little interest in local teams playing amproactive role sadly.Twinsplustwohttps://www.blogger.com/profile/14647701493165196509noreply@blogger.comtag:blogger.com,1999:blog-90512534160842468.post-38602042079451790232017-07-02T12:24:48.832+01:002017-07-02T12:24:48.832+01:00We have two children with Eosinophils in thier Gi ...We have two children with Eosinophils in thier Gi tract, we were previously told it was called EGID as I understand it GOSH are trying to move away from called it this/ a name. I too agree, I don't need a label for the endless list of medical problems my children face and endure but just need supportive care. Fortunately my experience has been largely positive of the medical care we have received but my husband and I have had to be extremely pro active and positive which is exhausting at times. Our youngest is 5 months old and I knew when she was three days old that she was refluxing and allergic to my milk, she had the same problems as our son, who is six. We had to fight our go to get omeprazole and neonate prescribed. It eventually took a hospital admission and my baby losing huge amounts of weight for them to do this. I could feel very angry and bitter that my child was put through unnecessary pain and stress but instead I try to be a positive force for my children's sake and put it down to another experience on this rollercoaster! <br />I really feel educating other health care professionals is what is needed so that this children can be cared for locally this would take the pressure off GOSH. Anonymoushttps://www.blogger.com/profile/15598536539904807763noreply@blogger.comtag:blogger.com,1999:blog-90512534160842468.post-87293730317051334672017-05-18T20:08:28.879+01:002017-05-18T20:08:28.879+01:00This comment has been removed by a blog administrator.Clarehttps://www.blogger.com/profile/17398948806110919902noreply@blogger.com